Neurodevelopmental Disabilities. Clinical Care for Children and Young Adults

ABOUT THIS BOOK

Developmental disabilities or neurodevelopmental disabilities (includes intellectual disability) are a diverse group of chronic disorders that begin at anytime during the development process (including conception, birth, and growth) up to 22 years of age and last throughout an individual’s lifetime. Major disabilities include intellectual disability, learning disabilities, communication disorders, autism spectrum disorders, cerebral palsy and neural tube defects.

This book is a handy guide for practicing physicians and allied health professionals, who care for children and adolescents with developmental disabilities and their families. Written and edited by experts in the field engaged in the practice of developmental disabilities, this book provides a concise and easily accessible source on the subject. The consistent style, simplicity of presentation and numerous tables and figures enhance the understanding of complex concepts.

Content Level » Professional/practitioner

Keywords » Behavioral pediatrics - Child health and human development - Child neurology - Developmental pediatrics - Disability

Related subjects » Medicine - Neurology - Neuroscience - Pediatrics - Public Health

TABLE OF CONTENTS

Foreword
I Leslie Rubin, MD

Chapter 1
Neurodevelopmental disabilities: Introduction and epidemiology
Dilip Patel and Joav Merrick

Chapter 2
Basic concepts of developmental diagnosis
Dilip Patel

Chapter 3
Psychological assessment and testing
Margo Adams Larsen, Erin Tentis-Berglund, Robin Joseph and Helen D Pratt

Chapter 4
Inborn errors of metabolism
Manmohan Kamboj

Chapter 5
Genetic evaluation in developmental disabilities
Helga Toriello

Chapter 6
Neurodevelopmental aspects of common genetic syndromes
Helga Toriello

Chapter 7
Autism spectrum disorders
Ahsan Nazeer

Chapter 8
Attention deficit hyperactivity disorder
Donald E Greydanus

Chapter 9
Sleep in children and adolescents with neurobehavioral disorders
Bantu Chhangani and Donald E Greydanus

Chapter 10
Learning disabilities
Helen D Pratt and Donald E Greydanus

Chapter 11
Intellectual disability
Dilip Patel and Joav Merrick

Chapter 12
Developmental language disorders
Nikola Nelson

Chapter 13
Disorders of speech and voice
Helen Sharp and Stephen M Tasko

Chapter 14
Tic disorders
Donald E Greydanus

Chapter 15
Medical management of cerebral palsy
Nancy N Dodge

Chapter 16
Myelomeningocele
Dilip R Patel

Chapter 17
Pain in individuals with intellectual and developmental disabilities
Lynn Breau, Meir Lotan and Jeffrey L Koh

Chapter 18
Visual impairment
Katherine Bergwerk

Chapter 19
Impact of neurodevelopmental disorders on hearing in children and adolescents
Bharti Katbamna and Teresa Crumptom

Chapter 20
Sexuality and gynecological care
Donald E Greydanus and Hatim Omar

Chapter 21
Dental aspects
Ilan Feldberg and Joav Merrick

Chapter 22
General medical care of individuals with developmental disabilities
Joav Merrick and Mohammed Morad

Chapter 23
Principles of team care for children with developmental disabilities
Dilip Patel and Helen D Pratt

Chapter 24
Working with the family and care givers
Helen D Pratt

Chapter 25
Allied health professionals and intellectual disability: Moving towards independence
Meir Lotan

Chapter 26
Adoption
Gary Diamond and and Yehuda Senecky

Chapter 27
Palliative care and end-of-life issues
Joav Merrick and Mohammed Morad

Chapter 28
Transition from child oriented to adult oriented health care
Dilip R Patel and Donald E Greydanus

Chapter 29
Psychosocial functioning in youth with chronic illness
John A Yozwiak, Regan E Settles and Rachel F Steffens

Chapter 30
Parents and siblings
Joav Merrick, Isack Kandel and Mohammed Morad

Chapter 31
Parenthood
Joav Merrick, Isack Kandel and Mohammed Morad

ACKNOWLEDGEMENTS

Chapter 32
About the editors

Chapter 33
About Michigan State University College of Human Medicine

Chapter 34
About Division of Adolescent Medicine University of Kentucky

Chapter 35
About National Institute of Child Health and Human Development
Jerusalem, Israel

INDEX

AUTHORS & EDITORS

Dilip R Patel, MD, FAAP, FSAM, FAACPDM, FACSM, is professor in the Department of Pediatrics and Human Development at the Michigan State University College of Human Medicine, East Lansing, Michigan, USA. He is a full time teaching faculty member in the Pediatric Residency Program at the Michigan State University Kalamazoo Center for Medical Studies, Kalamazoo, Michigan, USA. Dr Patel has subspecialty training and interests in neurodevelopmental disabilities, developmental-behavioral pediatrics, adolescent medicine and sports medicine. He has published numerous papers on a wide ranging topics in these areas and has edited several special symposia and books. E-mail: patel@kcms.msu.edu

Donald E. Greydanus, MD, FAAP, FSAM, FIAP (H) is Professor of Pediatrics and Human Development at Michigan State University College of Human Medicine (East Lansing, Michigan, USA) and Director of the Pediatrics Residency Program at Michigan State University/ Kalamazoo Center for Medical Studies (Kalamazoo, Michigan, USA). Received the 1995 American Academy of Pediatrics’ Adele D. Hofmann Award for “Distinquished Contributions in Adolescent Health”, the 2000 Mayo Clinic Pediatrics Honored Alumnus Award for “National Contributions to the field of Pediatrics,” and the 2003 William B. Weil, Jr., M.D. Endowed Distinguished Pediatric Faculty Award from Michigan State University College of Medicine for “National & International Recognition as well as Exemplary Scholarship in Pediatrics.” Received the 2004 Charles R. Drew School of Medicine (Los Angeles, CA) Stellar Award for Contributions to Pediatric Resident Education and awarded an honorary membership in the Indian Academy of Pediatrics—an honor granted to only a few pediatricians outside of India. Was the 2007 Visiting Professor of Pediatrics at Athens University, Athens, Greece and received the Michigan State University College of Human Medicine Outstanding Community Faculty Award in 2008. Past Chair of the National Conference and Exhibition Planning Group (Committee on Scientific Meetings) of the American Academy of Pediatrics and member of the Pediatric Academic Societies’ (SPR/PAS) Planning Committee (1998 to Present). Member of the Appeals Committee for the Pediatrics’ Residency Review Committee (RRC) of the Accreditation Council for Graduate Medical Education (Chicago, IL) in both Adolescent Medicine and General Pediatrics. Numerous publications in adolescent health and lectureships in many countries on adolescent health. E-mail: Greydanus@kcms.msu.edu

Hatim A Omar, MD, FAAP, Professor of Pediatrics and Obstetrics and Gynecology and Director of the Section of Adolescent Medicine, Department of Pediatrics, University of Kentucky, Lexington. Dr. Omar has completed residency training in obstetrics and gynecology as well as Pediatrics. He has also completed fellowships in vascular physiology and adolescent medicine. He is the recipient of the Commonwealth of Kentucky Governor’s Award for Community Service and Volunteerism He is the recipient of the Commonwealth of Kentucky Governer's Award for community service and volunteerism in 2000, KY teen Pregnancy Coalition Award for outstanding service 2002, Awards for suicide prevention from the Ohio Valley Society for Adolescent Medicine and Kentucky Pediatric Society in 2005 and 2007, Sexual Abuse Awareness Month Award for his work with sexual abuse victims from the KY association of sexual assault professionals in 2007, Special Achievement Award from the American Academy of Pediatrics 2007 and the Founders of Adolescent Medicine Award from the AAP in 2007. He is well known internationally with numerous publications in child health, pediatrics, adolescent medicine, pediatric and adolescent gynecology. E-mail: haomar2@uky.edu

Joav Merrick, MD, MMedSci, DMSc, is professor of pediatrics, child health and human development affiliated with Kentucky Children’s Hospital, University of Kentucky, Lexington, United States and the Zusman Child Development Center, Division of Pediatrics, Soroka University Medical Center, Ben Gurion University, Beer-Sheva, Israel, the medical director of the Health Services, Division for Mental Retardation, Ministry of Social Affairs, Jerusalem, the founder and director of the National Institute of Child Health and Human Development. Numerous publications in the field of pediatrics, child health and human development, rehabilitation, intellectual disability, disability, health, welfare, abuse, advocacy, quality of life and prevention. Received the Peter Sabroe Child Award for outstanding work on behalf of Danish Children in 1985 and the International LEGO-Prize (“The Children’s Nobel Prize”) for an extraordinary contribution towards improvement in child welfare and well-being in 1987. E-mail: jmerrick@internet-zahav.net;