Introduction.- Symptoms and symptom management status.- Patient reported outcomes as an area of science with practice implications.- Self-care management - patient.- Exercise/Physical activity.- Family centered care and family member's self-care.- Palliative care and end of life care, including communication.- Treatment decision making.- Technology for monitoring.- Patient Resiliency.- Nurse Resiliency and Self-Care.- Staffing.- Survivorship.- Simulation/ Education.- Genetics.- Adherence with Healt Prescriptions.- Young Adult.- Alternative/ Complementary Interventions.- Patient and Family Education.- Direct Supportive Care by the Nurse.
This book presents the current state of the nursing science in topics relevant to the care of pediatric oncology patients and their families across the treatment trajectory and is framed within a precision health framework. The spectrum of topics covered is wide, including, for example, symptom management, self-care management, exercise and physical activity, family-centered care, palliative care, the role of the nurse in treatment decision making, patient and nurse resiliency, survivorship, and genetic counseling. Throughout, there is a focus on the implications of research for nursing practice, highlighting which elements of the available evidence are ready for translation into practice and which are not. In addition, careful attention is paid to the role that nursing can play in further advancing science through clinical research. The authors are leading experts from across the globe. The book will be of special interest for pediatric oncology nurses, including direct care nurses, research nurses, and nursing leaders, and will also be a stimulating source for researchers and non-oncology nurses.
Pamela S. Hinds, PhD, RN, FAAN, is the Executive Director of the Department of Nursing Science, Professional Practice, and Quality, the William and Joanne Conway Endowed Chair in Nursing Research, and the Research Integrity Officer at Children's National Health System in Washington, D.C., and a Professor of Pediatrics at the George Washington University, School of Medicine and Health Sciences in Washington, D.C. She is adjunct professor for the University of Pennsylvania School of Nursing, Johns Hopkins University School of Nursing, and the University of Maryland College of Nursing. Dr. Hinds has created and led research related to the pediatric cancer experience, quality of life, fatigue, and altered sleep during the treatment of pediatric cancers, and end-of-life communication and decision making. She served on the Institute of Medicine (IOM) committee on end-of-life and palliative care for children in America (2003) and on the committee on dying in America (2015), the National Quality Forum panel on palliative and end-of-life care in America, and the IOM committee on Dying in America (2014) and is currently serving on the National Academies of Sciences, Engineering and Medicine Roundtable on Quality Care for People with Serious Illness (2016-20). Dr. Hinds is an Oncology Nursing Society Distinguished Nurse Researcher and the Association of Pediatric Oncology and Hematology Distinguished Nurse Researcher. She is Editor-in-Chief for the journal, CANCER NURSING: An International Cancer Journal.
Lauri A. Linder, PhD, APRN, CPON, is an Associate Professor at the University of Utah College of Nursing and pediatric oncology clinical nurse specialist at Primary Children's Hospital in Salt Lake City, Utah. She is also a member of the Cancer Control and Population Sciences group at the Huntsman Cancer Institute. Dr. Linder's research interests relate to symptom management and supportive care for children, adolescents, and young adults with cancer across the treatment continuum. Her work has explored interrelationships between children's symptoms and the environment. She has led multisite and interdisciplinary research teams to harness the capacity of mobile technology in novel ways to support a greater understanding of the child's and the adolescent's perspectives in the clinical setting. Dr. Linder received the Novice Nurse Researcher award from the Association of Pediatric Hematology/Oncology Nurses in 2017. She is also a member of the editorial board for the Journal of Pediatric Oncology Nursing.