Cultural Sensitivity and Responsiveness in Neurorehabilitation. A Personalized Approach for Speech-Language Pathologists

Acknowledgments
Contributors

Part I. Introduction to Personalized Care

Chapter 1. Finding Our North Star: Introduction to Multicultural Neurogenics and Personalized Speech-Language Neurorehabilitation Care for People From Diverse Communities
Gloriajean L. Wallace
 
Chapter 2. Implicit Bias
Karen C. Davis and Noma Anderson

Chapter 3. Interprofessional Collaboration and Cultural Competence in Neurorehabilitation
Jeffrey S. Hecht and Diego Ricardo Báez

Chapter 4. The Multiculturally Competent Clinician’s Toolkit to Effective Case Management and Collaborative Practices in Working With Diverse Populations
Maxine Langdon Starr

Chapter 5. Providing Neurorehabilitation Services to Multiethnic Adult Populations With Communication Disorders
José G. Centeno

Chapter 6. Advancing Equity in Aphasia Outcomes: An Exploration of Race and Clinical Management Considerations
Charles Ellis Jr., Richard K. Peach, and Patrick M. Briley

Part II. Building a Foundation for Neurorehabilitation in a Multicultural World: Personalization Personified

Chapter 7. Preparing for Case Contact: Conducting Ethnographic Interviews
Carol Westby

Chapter 8. Speech-Language Pathologists (SLPs) Working With Interpreters and Translators in a Medical Setting
Henriette W. Langdon

Chapter 9. Assessment of Individuals From Culturally and Linguistically Diverse Populations
Gloriajean L. Wallace

Chapter 10. Management of Hearing Loss for Speech-Language Pathologists and Audiologists Who Provide Services to Neurogeriatric Populations From Diverse Communities
Jay R. Lucker

Chapter 11. Treatment of Individuals From Culturally and Linguistically Diverse Populations
Maria L. Muñoz

Chapter 12. A Journey Toward Communication Health and Wellness in Adult Patients and Their Families: Strategies for Communication Sciences and Disorders Practitioners and Students
Carolyn M. Mayo and Robert Mayo

Chapter 13. Complimentary and Integrative Medicine in Adult Neurogenics
Rebecca Shisler Marshall, Jacqueline Laures-Gore, and Bijoyaa Mohapatra

Part III: Specialty Neurogenics Chapters

Chapter 14. Aphasia
Samantha Siyambalapitiya, Vishnu K. K. Nair, Frances Cochrane, and Anne Huang

Chapter 15. Traumatic Brain Injury in Special Populations
Carl A. Coelho, Alaina S. Davis, Sarah Key-DeLyria. André Lindsey, Annette T. Maruca, Jennifer Rae Myers, and Nancy P. Solomon

Chapter 16. Cultural Considerations in the Assessment of Communication After Right Hemisphere Brain Damage
Perrine Ferré, Rochele P. Fonseca, Yves Joanette, Margaret Lehman Blake, and Jamila Minga 
  
Chapter 17. Dementia and Mild Cognitive Impairment: Understanding the Role of Speech-Language Pathologists
Nidhi Mahendra

Chapter 18. Management of the Dysarthrias: Communication in a Cultural Context
Kathryn Yorkston, Kathryn Lent, Michael I. Burns, and Carolyn Baylor

Chapter 19. Cultural Responsiveness in Dysphagia Practice: Complex Systems
Luis F. Riquelme and Mershen Pillay

Part IV: A Sampling of Information About U.S. Census Bureau Racial/Ethnic Groups
 
Chapter 20. Blacks and the African Diaspora With Focus on African Americans: Varied Cultures, Communication Patterns, and Clinical Management Considerations
Gloriajean L. Wallace

Chapter 21. Hispanics: Richness in Diversity
Silvia Martinez

Chapter 22. Exploring the Diverse Communication and Cultural Landscape of Chinese Americans and Asian Americans: Implications for Health Care
Anthony Pak-Hin Kong and Li-Rong Lilly Cheng

Chapter 23. American Indians and Alaska Natives: Culture, Communication, and Clinical Considerations
Ella Inglebret and Rhonda Friedlander

Chapter 24. White Americans: Culture, Communication, and Clinical Considerations
Angela Ciccia and Steven J. Cloud

Part V: Intersectionality: Confounding Effect of Factors That Pose Unique Challenges to Care  

Chapter 25. Ethical Perspectives for Serving 2SLGBTQIA+ Individuals With Neurogenic Considerations
Ruchi Kapila and Haley Fulk

Chapter 26. Implementing Culturally Responsive and Trauma-Informed Care in Acquired Cognitive–Communication Disorders: Speech-Language Pathology Considerations for Marginalized and Underserved Populations
Catherine Wiseman-Hakes, Kathryn Y. Hardin, and Maya Albin

Chapter 27. The Deaf Community: Culture, Communication, and Neurorehabilitation
Kristen K. Maul, Daniel Maier, and Laura Curtin

Part VI: Contributions From Educators and a Look at Neurorehabilitation Care Trends Within the U.S.

Chapter 28. From Ally to Accomplice: Dismantling White Supremacy Culture in the Classroom and the Workplace (Observations About DEI From an Academic’s Perspective)
Diego Ricardo Báez

Chapter 29. Academic and Clinical Training to Promote Culturally Sensitive and Responsive Speech-Language Pathology Neurorehabilitation Care
Gloriajean L. Wallace

Chapter 30. Speech-Language Pathology Neurorehabilitation Service Trends for People From Diverse Communities: Evidence From the American Speech-Language-Hearing Association’s National Outcomes Measurement System (NOMS) 
Robert C. Mullen and Gloriajean L. Wallace

Part VII: Interesting Case Scenarios and Practical Clinical Discussions About SLP Neurorehabilitation for People From Diverse Communities

Chapter 31. Collaboration Between a Medical Speech-Language Pathologist and an Interpreter: A Simulated Case Illustration (With Video)
Henriette W. Langdon and Maxine Langdon Starr (With Hernández Joel Mancla in the Role of the Patient)

Chapter 32. Virtual Aphasia Group Treatment in a Life Participation Setting (With Video)
Suzanne Coyle and Brooke Hatfield

Chapter 33. Cultural Adaptation of Cognitive Stimulation Therapy for a Community of Black Older Adults in North St. Louis (With Video)
Whitney Anne Postman, Hisako Matsuo, Kailin Leisure, Rebecca Poche, Tayla Slay, Sydney Elizondo, and Elena Everhart

35. Cocreating a Culturally Responsive and Trauma-Informed Approach for Speech-Language Pathologists Working With Adults With Acquired Neurogenic Cognitive–Communication Disorders: A Case Narrative (With Video)
Catherine Wiseman-Hakes, Roxanne Riess, and Maya Albin

Chapter 35. What to do When Mom Has a Hearing Loss? The Life Changing Benefits of Hearing Aids for an African American Nonagenarian (With Video)
Gloriajean L. Wallace and Gloria E. Valencia

Chapter 36. Complex Management Considerations for a Multilingual, Multimodal Stroke Survivor With Aphasia From the Deaf Community (With Video)
Kristen K. Maul, Daniel Maier, and Laura Curtin

Chapter 37. American Samoa and the Military: A Case Demonstrating Where Cultural, Language, Rural Geographic Location, and Military Experience Intersect
Pauline Mashima and Shari Goo-Yoshino

Chapter 38. Unauthorized Immigration Status
Wendy Burton and Maria Carolina Amaya

Chapter 39. “A” is for Amazing: A Survivor’s Journey Through Stroke, Aphasia, and COVID-19 (With Video)
Gloriajean L. Wallace and Patrick E. Carey

Chapter 40. Discussion About Neurorehabilitation From the Voices of International Neurorehabilitation Visionaries 
Gloriajean L. Wallace, Isamu Shibamoto, Tamaki Onishi, Pauline Mashima, Gerald C. Imaezue, Jacqueline Stark, Sonia Fredericks, and Won-Ming Amy Wong

Epilogue: Nothing About Us Without Us: People With Neurologically Based Communication, Cognitive, and Swallowing Disorders Share Their Thoughts
Interviewer Gloriajean L. Wallace, With Interview Participants (in Order of Appearance): Jenell Gordon, Tara Green, Rick Mason, Kelvin Williams, María Fernanda Corral Agudelo, Sofia Irene Bauzá, Omar Bordachar, Carolina Ulloa, Sofia Carrasco, Alfredo Díaz, Gloria E. Valencia (Lead Spanish Language Interpreter), and Maria Biti Clerici (Spanish Language Interpreter)

Cultural Sensitivity and Responsiveness in Neurorehabilitation: A Personalized Approach for Speech-Language Pathologists is a groundbreaking and transformative resource for designing quality and equitable neurorehabilitation care for individuals from diverse communities. Material coverage is comprehensive, and chapters are user-friendly for speech-language pathologists (SLP) and SLP students alike. Case presentations are provided to demonstrate best practices. As our world becomes increasingly more diverse, it is imperative for SLPs to be knowledgeable about and experienced with foundational information relating to diversity, equity, inclusion, implicit bias, intersectionality, and SLP best practices for cases from culturally and linguistically diverse communities. The text culminates with an insightful epilogue featuring people from diverse communities from around the world who have neurogenic communication, cognitive, and swallowing disorders, and who share information about what they would like neurorehabilitation specialists to know.

The book is organized into seven sections:

Part I: Introduction to Personalized Care sets the stage by introducing the concept of multicultural neurogenics and personalized care. Chapters delve into topics like implicit bias, interprofessional collaboration, and the tools clinicians need for effective case management when working with diverse populations.
Part II: Building a Foundation for Neurorehabilitation in a Multicultural World: Personalization Personified provides practical guidance for SLPs. It covers the preparation for case contact, working with interpreters and translators, and the assessment and management of speech, language, cognitive, and swallowing issues in culturally and linguistically diverse populations.
Part III: Specialty Neurogenics Chapters offers in-depth knowledge on various neurogenic conditions such as aphasia, traumatic brain injury, right hemisphere brain damage, the dementias, dysarthrias, and dysphagia within a cultural context.
Part IV: A Sampling of Information About U.S. Census Bureau Racial/Ethnic Groups delves into the unique cultural and communication factors related to various racial and ethnic groups in the United States, including Blacks, Hispanics, Chinese and Asian Americans, American Indians and Alaska Natives, and White Americans.
Part V: Intersectionality examines the intersection of factors that create unique challenges in care, including ethical perspectives for serving LGBTQIA+ individuals, trauma-informed care for marginalized populations, and the cultural aspects of care for the Deaf community.
Part VI: Contributions from Educators and a Look at Neurorehabilitation Care Trends within the U.S. provides insights from academics on diversity, equity, and inclusion in education, designing courses that promote DEI, and current trends in SLP neurorehabilitation.
Part VII presents real-world cases with accompanying videos illustrating best practices in SLP neurorehabilitation care for diverse communities. These cases cover a wide range of scenarios, from collaboration between medical SLPs and interpreters to culturally adapted therapy for older adults and complex management considerations for stroke survivors from the Deaf community. This section ends with a chapter by visionaries from Asia, Africa, Europe, Oceania, South America, and North America sharing their insights on bridging the international diversity sensitivity and responsiveness gap, emphasizing the importance of cultural competence in a global context.

• Comprised of 40 chapters by 80 renowned authors and over 100 total contributors from diverse communities, including experienced SLP clinicians, academicians, and researchers; diversity, equity, and inclusion (DEI) specialists; and professionals from the areas of audiology, medicine, psychology, and education
• Includes real-world case studies, including accompanying videos to illustrate best practices in SLP neurorehabilitation care for people from diverse communities
• Discusses diversity matters for people with major neurologically based communication, cognitive, and swallowing disorders; and by race/ethnicity and culture, with attention to intersectionality 
• Features content designed specifically for this book, including considerations for individuals with neurogenic disorders who are from the Deaf community; trauma-informed care for the unsheltered and people who have experienced interpartner violence; as well as intersectionality issues
• Incorporates perspectives about the value of non-traditional approaches to supplement SLP treatment, health literacy, and public health partnerships
• Provides information by international SLPs about DEI issues that matter most in their respective countries and features thoughts about future neurorehabilitation directions
• Includes interviews with people who have neurogenic communication, cognitive, and swallowing disorders from culturally and linguistically diverse communities in the United States and abroad, providing insights into what matters most and how to best achieve personalization of neurorehabilitation care from their perspective

Gloriajean L. Wallace, MA, PhD, MDiv, ASHA-CCC, ANCDS-BC, is a tenured Catherine Brewer Smith Distinguished Professor of Communication Disorders and Sciences at Western Carolina University, in Cullowhee, North Carolina. At the age of 7 years, she decided to become a speech-language pathologist (SLP) after reading about the impact that Annie Sullivan had on Helen Keller’s life, and then attending a play with her parents where both characters came to life.

Dr. Wallace obtained a BS from Miami University in Oxford, Ohio; an MA from the University of Colorado, Boulder; a PhD from Northwestern University in Evanston, Illinois; and postdoctoral training at the University of Arizona, Tucson and the Boston V.A. Dr. Wallace has had an illustrious career that spans 40 plus years, during which time she has served as Professor, Endowed Professor, Department Chairperson and Graduate Program Director, Medical SLP and Neurorehabilitation Coach and Advocate for people with neurogenic disorders, and Mentor to junior faculty and students (with a desire to help fill the speech-language pathology pipeline with the best and brightest future leaders).

Dr. Wallace specializes in neurogenics, with a focus on adult aphasia, and a special interest in people from underserved communities. This is her third neurogenics book. Dr. Wallace’s current research includes the development of an assessment system, the Reliable Assessment Inventory of Neuro-Behavioral Organization (RAINBO), designed for people from diverse backgrounds who have communication, cognitive, and swallowing impairments. It is her vision that the RAINBO will support the selection of evidence-based treatments and prediction of life participation outcomes.

Dr. Wallace is an ASHA Fellow, Board Certified by the Academy of Neurologic Communication Disorders and Sciences (ANCDS), and licensed to practice in North Carolina, California, Ohio, and Hawai’i. She is a recipient of the ANCDS Special Recognition for Leadership and Contributions to Neurogenics Award, and the National Black Association for Speech-Language-Hearing Association (NBASLH) Scholar Mentor Award. Dr. Wallace, is ordained as both an Interfaith and a Christian Minister, with extensive Chaplaincy training in medical contexts.