Chronic diseases have become predominant in Western societies and in many developing countries. They affect quality of life and daily activities and require regular medical care.
This unique monograph will bring readers up to date with chronic disease research, with a focus on health-related quality of life and patient perception of the impact of the diseases and health intervention, as well as psychological adaptation to thedisease. It considers the application of concepts and measures in medical and psychological clinical practice and in public health policies. Informed by theory, philosophy, history and empirical research, chapters will indicate how readers might advancetheir own thinking, learning, practice and research. The book is intended to be provocative and challenging to enhance discussion about theory as a key component of research and practice.
Perceived Health and Adaptation in Chronic Disease will be of interest to researchers and academics alike. It boasts a wide range of contributions from leading international specialists from Australia, Canada, Denmark, France, Germany, theNetherlands, Spain, Sweden, the UK and the USA. This has also allowed the book to provide readers with a multidisciplinary approach.
Part I: Concepts and models
Chapter 1. Introduction
Chapter 2. Chronic disease in medicine: past, present and possible future of a problematic concept.
Chapter 3. Conceptual Approaches to Perceived Quality of Life.
Donald L. Patrick
Chapter 4. ICF and other conceptual models: Rethinking the role of context and implications for assessing health.
Elizabeth M. Badley
Chapter 5. Psychological adjustment to chronic disease
Annette L. Stanton, Michael A. Hoyt
Part II: Measurement
Chapter 6. Contemporary perspectives on the epistemology of measurement in the social sciences
Chapter 7. Advances in social measurement: A Rasch measurement theory.
Chapter 8. A matter of convergence: Classical and modern approaches to scale development.
Chapter 9. Item generation and construction of questionnaires.
Nina Tamm, Janine Devine, Matthias Rose
Chapter 10. Alternative approaches to questionnaires in measuring heath concepts. The example of measuring how patient actually performs activities in daily life.
Wilfred F. Peter, Francis Guillemin, Caroline B. Terwee
Part III:. Interpretation of perceived health data
Chapter 11. Introduction
Chapter 12. Chronic conditions, Disability and Perceived health: Empirical support of a conceptual model.
Jordi Alonso, Carlos G. Forero, Núria D. Adroher, Gemma Vilagut, on behalf of the World Mental Health (WMH) Consortium
Chapter 13. Social heterogeneity in self-reported health status and the measurement of inequalities in health
Florence Jusot, Sandy Tubeuf, Marion Devaux, Catherine Sermet
Chapter 14. Social heterogeneity of perceived health
Thierry Lang, Cyrille Delpierre, Michele Kelly-Irving
Chapter 15. The complexity of interpreting changes observed over time in Health-Related Quality of Life: a short overview of 15 years of research on response shift theory
Antoine Vanier, Bruno Falissard, Véronique Sébille, Jean-Benoit Hardouin
Chapter 16. Interpretation of perceived health data in specific disorders.
Anne-Christine.Rat, Jacques Pouchot
Part IV: Knowledge and decision
Chapter 17. Perceived individual freedom and collectively provided care.
Chapter 18. Patient-reported outcomes: Clinical applications in the field of chronic pain self-management.
James Elander, Elisabeth Spitz
Chapter 19. Clinical decision based on evidence
Emmanuelle Busch, Marc Debouverie
Chapter 20. Stakes and challenges in decision making in public health
Francis Guillemin is epidemiologist and rheumatologist, professor of public health, Director of the APEMAC Research unit on Chronic diseases, perceived health and adaptation processes, of the University of Lorraine, Nancy, France.
Alain Leplège, is professor at Paris Diderot University, France, specialized in health service research and outcome measurement, methodology and epistemology.
Serge Briançon is epidemiologist, professor emeritus of public health, head of the School of Public Health (2001-2016) at Lorraine University, Nancy, France.
Elisabeth Spitz is professor of health psychology at the University of Lorraine, Metz, France.
Joël Coste is a rheumatologist, epidemiologist and historian of medicine, and professor at Paris Descartes University and Ecole Pratique des Hautes Etudes, France.