This book fills an important niche in the market providing practical expert advice on service user (patients, carers and the public) involvement in nursing and healthcare research. An invaluable guide for anyone working or involved in nursing and healthcare research, this book provides a step-by-step guide to the principles and process of involvement, including understanding the rationale for involvement, designing involvement, working with service users, and evaluating what has been achieved.
With illustrations, worked examples and tool sheets throughout, this evidence-based guide uses real life examples from recent research studies in health and social care research, thus relating theory to practice in a meaningful way. The Handbook of Service User Involvement in Nursing & Healthcare Research introduces a wide range of key issues, including:
- Why? Why should researchers involve service users?
- How? How can researchers and service users work together successfully and productively?
- Who? Who chooses to become involved in research? How are issues of representation and diversity addressed?
- When? At what stage should service users be involved in the research process?
TABLE OF CONTENTS
- About the authors
- Structure of the book
Part I Preparing
- 1 Perspectives and expectations
- 2 Concepts
- 3 Designing involvement
- 4 Working relationships
Part II Learning
- 5 Patients, clients and carers
- 6 Involvement over the life course
- 7 Seldom-heard groups
Part III Evaluating
- 9 Quality
- 10 Impact
- 11 International perspectives
- 12 Conclusion
- Further reading
- Web-based resources