Handbook of Palliative Care

List of Contributors vii

Foreword x

Preface xii

Acknowledgements xiii

1 The Context and Principles of Palliative Care 1
Christina Faull

2 Patient and Public Involvement in Palliative Care 16
John Rosenberg and Kerrie Noonan

3 Equity, Diversity, and Inclusion in Serious Illness 25
Noura Rizk, William E. Rosa and Liz Grant

4 Palliative Care in the Community 39
Matthew Doré, Catherine Millington-Sanders, Rachel Campbell, Paul Thomas, Laura Calamos, Rachael Marchant, Carolyn Doyle, Rachel Lukwago, Karen Hodson and Susan van Beveren

5 Hospital Palliative Care 53
Paul W. Keeley

6 Ethics in Palliative Care Practice 67
Derek Willis

7 Conversations and Communication 76
Sarah Russell

8 Integrating New Perspectives: Working with Loss and Grief in Palliative Care 89
Nikki Archer and Linda Machin

9 Recognising Deterioration, Preparing, and Planning for Dying 104
Jo Wilson and Sarah Russell

10 Pain and Its Management 116
Richard Kitchen

11 The Management of Gastrointestinal Symptoms and Advanced Liver Disease 138
Andrew Chilton, Christina Faull, Wendy Prentice and Monica Compton

12 The Management of Respiratory Symptoms and Advanced Chronic Obstructive Pulmonary Disease 159
Frances Hakkak

13 Managing Complications of Cancer 175
Lesley Charman, Rachael Barton and Katie Spencer

14 Handbook of Palliative Care: Palliative Care for People with Progressive Neurological Disorders 203
David Oliver and Idris Baker

15 ‘Palliative Care for Infants, Children, and Young People’ 218
Yifan Liang

16 Palliative and End of Life Care: Frailty, dementia and multi-morbidity 230
Sarah Russell

17 Palliative Care in Advanced Heart Failure 242
Amy Gadoud

18 Palliative Care in Advanced Renal Disease, 254
Jo Wilson and Jenny Cross

19 Palliative Care for People Living with Mental Illness and People with Intellectual Disabilities 269
Jed Jerwood and Gemma Allen

20 Care in the Last Days of Life and after Death 283
Nikhil Sanyal and Alistair Duncan

21 Medicines Management in Palliative Care Including Syringe Drivers 306
Kerry Parker and Michelle Aslett

22 Spirituality in Palliative Care 328
Margaret Holloway

23 Creating Space, Clarity, and Containment in order to Sustain Staff: Managing the Emotional Impact of Palliative Care Work 338
Barbara Wren

24 Patient/Individual and Carer Wellbeing 348
Tes Smith

Index 364

Comprehensive resource utilising up-to-date evidence and guidelines to support non-specialists in palliative care in both hospital and community settings

Building on the success of previous editions, this new edition of the award winning handbook has a practical focus and provides the user with an approach to clinical challenges while also providing enough information to explain why this approach is suggested. The 4th edition of Handbook of Palliative Care supports non-specialists in palliative care in both hospital and community settings and focuses on holistic care and therapeutic interventions. With several new chapters and content significantly updated to reflect new evidence and practice, the 4th edition also presents up-to-date evidence, guidance in a succinct format and utilises flow charts and figures to enhance the accessibility of information.

Written by four highly accomplished nursing and medical authors with over 100 years’ experience between them in hospital, hospice, care home and community settings, Handbook of Palliative Care provides:

• Guidance from clinicians who are experts in their field
• An acknowledgment of the requirements of healthcare professionals attending to patients with palliative care needs, along with a dedicated chapter addressing this topic
• Contemporary guidance on medicine management, symptom control and managing complications of cancer
• Palliative care in heart failure, renal disease and advanced liver, neurological and respiratory diseases
• An in-depth look at patient and public involvement in palliative care and inequity
• Skill development including communication, ethical considerations and spiritual care
• New chapters including frailty, dementia, and multi-morbidity; and palliative care for people living with mental illness and people with intellectual disabilities

This 4^th edition of Handbook of Palliative Care is an ideal supporting resource for doctors, nurses and other healthcare professionals caring for patients with palliative care needs in the UK and beyond. The 1^st edition was the winner of the 1999 BMA Medical Book of the Year Prize.