Handbook of Disease Burdens and Quality of Life Measures, 3 Vols.

About this book

• An important resource for interpreting the many instruments used in quality of life research
• Includes an extensive glossary of key terms
• Three volumes, over 250 chapters

The impact of illness on individual lives and society at large was once considered too vast to gauge. More recently, quantitative measures of quality of life, life expectancy, and the financial costs of illness and treatment are showing not only how this impact can be calculated but also how the results can be used to further research and improve public health. The Handbook of Disease Burdens and Quality of Life Measures is the first comprehensive reference to these instruments and their findings on an international scale.

The Handbook features in-depth reviews of disability-adjusted life years (DALYs), quality-adjusted life years (QALYs), quality of life and financial measures for over 120 diseases and conditions. Its editors have organized this critical information for maximum access and ease of use, with abstracts, definitions of key terms, summary points, and dozens of figures and tables that can enhance the text or stand alone. Readers may access data by country, region, or population, or by disease entity, e.g.:

• Cardiovascular and pulmonary, including hypertension, stroke, and COPD.
• Viral, bacterial, microbial, parasitic, and other infectious diseases, including HIV/AIDS, tuberculosis, encephalitis, and dengue fever, plus vaccination issues.
• Cancer, including breast, prostate, cervical, colorectal, and pediatric.
• Psychosocial, psychiatric, sensory, and addictive (drugs, alcohol, tobacco) disorders.
• Topics ranging from toxic exposure (injection contamination, occupational hazards, environmental pollutants), to special populations (children, the elderly in China, the city of Los Angeles), to commonly-occurring conditions (rheumatoid arthritis, menopause, macular degeneration).
• Plus chapters discuss specific measures for assessing health and disease impact, such as the WHOQoL questionnaire, the SF-36 Short-Form Health Survey, and the Quality of Life in Later Life Questionnaire.

The Handbook’s broad coverage and meticulous, up-to-date detail make it essential for public health researchers in the area of quality of life.

Written for:

Researchers in quality of life; public health practitioners, epidemiologists, sociologists, health economists

Table of contents

Preface

Part 1: Instruments Used in the Assessment of Disease Impact

• Accuracy of Death Certifications and the Implications for Studying Disease Burdens
• Calculating QALYs and DALY
• Chinese Quality of Life Measurement Form-35 Items
• Integration of Quality of Life and Survival for Comparative Risk/Outcome Assessment in Healthcare Industry
• Comparison of Three Quality of Life Questionnaires in Urinary Incontinence
• Keele Assessment of Participation (KAP)
• Patient-Reported SQOR-V Quality of Life Questionnaire in Venous Disorders
• Postoperative Quality of Life Assessment in the Over 80's after Cardiac Surgery
• Quality of Life Measures in Dentistry
• Quality of Life Measures in Patients with Oesophageal Cancer
• The Application of the ICF for the Classification and Measurement of the Burden of Disease and Quality of Life
• The BOMET-QoL Questionnaire
• The EQ-5D Quality of Life Questionnaire
• The Global Person Generated Index (GPGI)
• The Impact of Weight on Quality of Life (IWQOL) Questionnaire
• The Japanese Version of the EORTC Quality of Life Questionnaire
• The Quality of Life in Later Life (QuiLL) Questionnaire
• The Uniscale Assessment of Quality of Life
• The University of Washington Quality of Life (UW-QoL) Scale

Part 2: Disease Burdens, Disability-Adjusted Life Years and Other Measures of Harm or Disease

• Alcohol and Burden of Disease in Germany and Switzerland
• Alcoholic Beverage Preference and Mortality
• Atherosclerotic Burden and Mortality
• Burden of Cancer in Serbia
• Burden of Cerebrovascular Diseases in Serbia
• Burden of Chlamydia Trachomatis
• Burden of Disease and Years Lived with Disability Associated with Musculoskeletal Pain
• Burden of Disease Attributable to Obesity and Overweight: Korean Focus
• Burden of Disease Due to Alcohol and Alcohol Related Research
• Burden of Disease in Elderly Mexican People
• Burden of Ischaemic Heart Diseases in Serbia
• Burden of Maternal Mortality and Morbidity
• Burden of Stroke in Aboriginal and Torres Strait Islanders
• Burden of Stroke: Indian Perspective
• Burden of Tuberculosis: Serbian Perspectives
• Burdens of Disease Between Two Time Frames: Mexico Perspectives
• Completeness and Accuracy of Death Date and the Implications for Studying Disease Burdens
• Cost Features of the Mediterranean Diet and the Burden of Disease
• Cost-Effectiveness of Dengue Prevention: Vaccines and Vector Control
• Cost-Effectiveness of Surgery in Low-Income Countries: Examples in Sierra Leone and Cambodia
• Cost-Effectiveness of Treating Leishmaniasis
• Costs of Psoriasis: German Perspectives
• Critical Analysis of DALYs Due to Arsenic Contamination
• DALYs and Diarrhea
• DALYS and Economics of Vaccines
• DALYS and Public Health Programs for Stroke: Australian Perspectives
• DALYS and Under-Diagnosis of Common Chronic Diseases
• Disability-Adjusted Life Years (DALYS) Due to Occupational Airborne Exposures
• Disability-Adjusted Life Years (DALYS) Due to Occupational Carcinogens
• Disability-Adjusted Life Years (DALYS) Due to Sexual Behaviour
• Disability-Adjusted Life Years (DALYS) in Children and Adolescents in Europe
• Disability-Adjusted Life Years (DALYS) in Occupational Injuries and Accidents
• Disability-Adjusted Life Years (DALYs), Years of Life Lived with Disability (YLDs), and Years of Life Lost in Stroke: Italian Perspectives
• Disease Burden and Disability-Adjusted Life Years (DALYS) Due to Schizophrenia and Psychotic Disorders
• Disease Burden of Pertussis in Infants
• Disease Burdens and Disability-Adjusted Life Years (DALYS) Due to Meningococcal Meningitis in the African Meningitis Belt
• Disease Burdens and Disability-Adjusted Life Years (DALYS) in Aboriginal and Non-Aboriginal Populations
• Disease Burdens of Arthritis
• Economic Burden of Complications During Percutaneous Coronary Intervention
• Economic Burden of the Components of Metabolic Syndrome
• Estimating the Disease Burden of Combat Posttraumatic Stress Disorder in the United States Military and Department of Veterans Affairs Medical Centers
• Estimating the Disease Burden of Seasonal Affective Disorder
• Financial Burdens and Disability-Adjusted Life Years (DALYS) in Loss of Vision Due to Trachomatous
• Financial Burdens and Disability-Adjusted Life Years (DALYS) in Polio Eradication
• Financial Burdens and Disability-Adjusted Life Years (DALYS) Los Angeles County
• Financial Burdens and Disability-Adjusted Life Years (DALYS) in Echinococcosis
• Financial Impact of Obesity
• Financial Implications of Pancreas Transplant Complications
• Flows of Financial Resources in Health Research
• Global Burden of Mental Health
• Health Metrics and the East/West Health Divide in Europe: Rates, Expectancies and DALYs
• Healthy Life Expectancy: A Decade Comparison
• Individual Disability-Adjusted Life Years: A Summary Health Outcome Indicator Used for Prospective Studies
• Life Years (LYs) Saved, Quality-Adjusted Life Years (QALYs) Saved and Cost-Effectiveness of a School-Based Tobacco-Use Prevention Program
• Malarial Burden of Disease
• Measures of Disease Burdens Due to Japanese Encephalitis and Impact of Immunization Programs in Asia (China, Indonesia, Thailand and Vietnam)
• Economic Evaluation of Health Interventions in Tanzania
• Measuring Disease Burdens Associated with Water Supply and Wastewater Treatment - the Role of Quantitative Health Risk Assessment to Inform Policy Choices
• Pandemic Influenza: Potential Contribution to Disease Burdens
• Prophylaxis of Healthcare Workers in an Influenza Pandemia
• QALYs Gained in Antiviral Treatment of Chronic Hepatitis C - a Decision-Analytic Approach
• Quality of Life in University Students
• Smoking and DALYs: Netherlands Perspectives
• The Burden of Communicable and Non-Communicable Diseases in Developing Countries
• The Burden of Disease and Injury in Serbia
• The Burden of Lymphoedema: Togo Perspectives
• The Burden of Neglected Diseases in Developing Countries
• The Burden of Rotavirus Acute Gastroenteritis in Europe
• The Disease Burden Due to Epilepsy in Rural China
• Cancer Nutritional Wasting & Quality of Life: The Value of Early Individualised Nutritional Counselling
• The Disease Burden of Mastectomy Due to Cancer: Turkish Perspective
• The Disease Burden of Suicide
• The Economic Burden of Malaria in Nigeria and the Willingness to Pay
• The Economic Burden of Rheumatoid Arthritis: Asian and/or Thailand Perspectives
• The Economic Burden of Rotavirus Diarrhea in Taiwan
• The Global Burden of Anxiety and Mood Disorders
• The Global Tuberculosis Burden
• The Impact of Infectious Diseases on the Development of Africa
• The Income-Associated Burden of Disease in the United States.
• The Role of Indirect Effects on Economic Analyses of Vaccine-Preventable Diseases
• The Total Illness Burden Index
• The Use of Pharmacoepidemiological Database to Assess Disease Burdens: Application to Diabetes
• Using DALY to Prioritise Health Service Expenditures in a Single Country: Iran
• Utility Scores for Co-Morbid Conditions
• Worldwide Burden of Gynaecological Cancer
• Years Life Lost Due to Smoking: A Korean Focus
• Years of Life Lost (YLL) from Cancer and Applications to Research Funding
• Years of Life Lost as a Measure of Disease Burden: An Investigation of its Presentation, Meaning and Interpretation
• Years of Life Lost Due to Air Pollution in Switzerland: A Dynamic Exposure-Response Model
• Years of Life Lost from Lung, Stomach, Liver and Cervical Cancers: An Evaluation of the Top Cancer Killers
• Zinc Deficiencies and DALYS and Other Indices of Harm in India

Part 3: Quality of Life (QOL), Quality-Adjusted Life-Years (QALYs) and Financial Measures in Disease

• Weight Related Stigmatization: Effects on the Quality of Life of Obese Adolescents
• Adolescent Quality of Life in Australia
• Alternative Therapies and Quality of Life
• Anemia and Quality of Life Measures
• Back Pain and Quality of Life in Elderly Women
• Breast Reduction Surgery and Quality of Life and Clinical Outcomes
• Cancer: Association Between Nutrition and Quality of Life
• Chemosensory Dysfunction and Quality of Life in Cancer Patients
• Chemotherapy for Brain Metastasis and Quality of Life
• Chemotherapy Induced Nausea and Vomiting on Health-Related Quality of Life: Italian Perspectives
• Children with Cerebral Palsy, Psychometric Analysis and Quality of Life
• Chronic Illness and Quality of Life Among Refugee Populations
• Chronic Immune Stimulation Correlates with Reduced Phenylalanine Turnover
• Cochlear Implant Outcomes and Quality of Life in the Elderly
• Cochlear Implantation and Quality of Life in Deafness
• Cognitive Function, Mood and Health-Related Quality of Life in Hepatitis C
• Comparisons of Health-Related Quality of Life in Australian and Japanese Midlife Women
• DALYs and Other Measures of Disease Burden in Hypanosomiasis: Congo Perspectives
• Depressive Symptoms and Health-Related Quality of Life
• Disability and Quality of Life in Systemic Sclerosis
• Disease Burden of Respiratory and Diarrhoeal Disorders in Children: Hong Kong Perspectives
• Dollars per QALY of Nucleic Acid Blood Screening: USA Perspectives
• Effect of Parathyroidectomy on Quality of Life
• Effect of Trauma on Quality of Life in Postconflict Displaced Ethiopians
• Effectiveness of Meditation on Quality of Life
• Efficacy of Environmental Interventions on Asthma-Related Quality of Life
• Exercise and Quality of Life in Menopause
• Exercise Programs and Quality of Life in COPD
• Health-Related Quality of Life after Surgery for Crohn's Disease
• Health-Related Quality of Life and Priorization Strategies in Waiting Lists: Spanish Aspects
• Health-Related Quality of Life in Eating Disorders
• Health-Related Quality of Life in Obese Children and Adolescents
• Health-Related Quality of Life in Obsessive-Compulsive Disorder Subjects and their Relatives
• Health-Related Quality of Life in Pain Medicine
• Health-Related Quality of Life in Parents of Children with Asperger Syndrome and High-Functioning Autism
• Health-Related Quality of Life in Prisoners
• Health-Related Quality of Life in Systemic Lupus Erythematosus
• Health-Related Quality of Life of Living Kidney Donors
• Healthy Lifestyle Habits and Quality of Life in Diabetes
• Hemoglobin Fluctuations and Correlation with Quality of Life and Fatigue
• Hirsutism and Quality of Life
• Home Mechanical Ventilation and Quality of Life Measures
• Housing and Quality of Life
• Impact of Self-Perceived Bothersomeness, Quality of Life and Overactive Bladder Symptoms
• Implementing Interventions to Enhance Quality of Life in Overweight Children and Adolescents
• Influence of Age, Sex, and Atrial Fibrillation Recurrence on Quality of Life in Atrial Fibrillation
• Intrauterine Growth Restriction and Later Quality of Life
• Ischemic Stroke and Thrombolysis
• Issues in the Assessment of Quality of Life During Pregnancy
• L-Carnitine Supplementation and Quality of Life and Other Health Measures
• Leisure-Time Physical Activity and Quality of Life
• Low Testosterone Level in Men and Quality of Life
• Malnutrition in Chronic Kidney Disease and Relationship to Quality of Life
• Measuring Quality of Life in Macular Degeneration
• Nutrition and Quality of Life in Haemodialysis
• Nutritional Wasting in Cancer and Quality of Life: The Value of Early Individualised Nutritional Counselling
• Obesity's Final Toll: Influence on Mortality Rate, Attributable Deaths, Years of Life Lost, and Population Life Expectancy
• Oral Health Related Quality of Life
• Post-Traumatic Stress Disorder and Quality of Life in Female Victims
• Premenstrual Syndrome and Premenstrual Dysphoric Disorder: Issues of Quality of Life, Stress, and Exercise
• Probiotics and Quality of Life
• Pulmonary Disease, Lung Function and Quality of Life in Middle-Aged Chinese
• Quality of Life After Arterial Revascularization or Major Amputation
• Quality of Life After Laser Surgery for Eye Disorders
• Quality of Life Among Diabetic Subjects: Indian Perspectives
• Quality of Life Among Japanese Oral Contraceptive Users
• Quality of Life and Age Urinary Incontinence Severity: Turkish Perspectives
• Quality of Life and Alcoholism: A Nursing Perspective
• Quality of Life and Clinical Status of Children Operated on for Intractable Epilepsy
• Quality of Life and Costs in Atopic Dermatitis
• Quality of Life and Depression in Patient-Giver Scenarios: Reference to Amyotrophic Lateral Sclerosis
• Quality of Life and Depression of Police Officers: Chinese in Taiwan Perspectives
• Quality of Life and Drug Abuse: Iranian Perspectives
• Quality of Life and Financial Measures in HIV/AIDS in Southern Africa
• Quality of Life and Financial Measures in Surgical and Non-Surgical Treatments in Emphysema
• Quality of Life and Functional Outcome in Paediatric Patients Requiring Surgery: Italian Perspectives
• Quality of Life and Hearing Aids
• Quality of Life and Infertility
• Quality of Life and Low Back Pain
• Quality of Life and other Measures of Health Polymyalgia Rheumatica
• Quality of Life and Postoperative Anesthesia in Gastrointestinal Surgery
• Quality of Life and Pruritus
• Quality of Life and Psychiatric Symptomatology in Alcohol Detoxification
• Quality of Life and Sexuality (Sexual Dysfunction and Sexual Practice)
• Quality of Life and Stigma
• Quality of Life and Stress in Wheelchair Users
• Quality of Life and Tryptophan Degradation
• Quality of Life Assessment in Coronary Heart Disease Patients
• Quality of Life at the End of Life
• Quality of Life for Crohn's Disease
• Quality of Life for Patients Receiving Cancer Chemotherapy: Japanese Perspectives
• Quality of Life in Basal Ganglia Disorders
• Quality of Life in Bipolar Disorders
• Quality of Life in Breast Cancer Patients: A Minireview of the Literature
• Quality of Life in Childhood Brain Tumor Survivors
• Quality of Life in Children with Asthma
• Quality of Life in Children with Cerebral Palsy and their Siblings
• Quality of Life in Chronic Obstructive Pulmonary Disease: Japan Perspectives
• Quality of Life in Conservatively Treated Lumbar Disc d´Disease
• Quality of Life in Dementia Patients and their Proxies: A Narrative Review of the Concept and Overview of Appropriate Measurement Scales and Methods
• Quality of Life in Different Voice Restoration Methods After Laryngectomy
• Quality of Life in Elderly Dyspnea Patients
• Quality of Life in Elderly Patients Requiring Intensive Care Admission
• Quality of Life in Group-Based Intervention Program in Inflammatory Bowel Disease
• Quality of Life in Haemophilia
• Quality of Life in HIV Positive Injection Drug Users
• Quality of Life in Icelandic School Children
• Quality of Life in Immune Thrombocytopenic Purpura: China Perspectives
• Quality of Life in Liver Cirrhosis
• Quality of Life in Men Undergoing Radical Prostatectomy
• Quality of Life in Men with Chronic Prostatitis/Chronic Pelvic Pain Syndrome
• Quality of Life in Multiple Sclerosis
• Quality of Life in Myeloproliferative Disorders (MPDs)
• Quality of Life in Obstructive Sleep Apnoea/Hypopnoea
• Quality of Life in Oligomenorrhea and Amenorrhea
• Quality of Life in Patients with Diabetic Foot Ulcers
• Quality of Life in People with Lower-Limb Amputation
• Quality of Life in Primary Caregivers of Rheumatic Patients - a South American Experience
• Quality of Life in Renal Cancer: Effect of Treatment with Drugs
• Quality of Life in Renal Transplantation
• Quality of Life in Schizophrenia in Nigeria
• Quality of Life in Sex Offenders with Intellectual Disability
• Quality of Life in Spinal Cord Injury
• Quality of Life in Sporadic Adult-Onset Ataxia
• Quality of Life in Systemic Lupus Erythematosus Patients: Northeastern Brazil Perspectives
• Quality of Life in Toenail Onychomycosis
• Quality of Life in Urticaria
• Quality of Life in War Veterans
• Quality of Life Issues in Chronic Fatigue Syndrome
• Quality of Life Measures During the Menopause
• Quality of Life Measures for the Blind: Sub-Saharan Africa
• Quality of Life Measures in Acute Coronary Syndrome
• Quality of Life Measures in Adolescents
• Quality of Life Measures in Caregivers of Patients with Cancer
• Quality of Life Measures in Children with Cancer
• Quality of Life Measures in Fibromyalgia
• Quality of Life Measures in Head and Neck Cancer
• Quality of Life Measures in HIV Low Income Women
• Quality of Life Measures in Liver Donors
• Quality of Life Measures in Lower Limb Ischaemia
• Quality of Life Measures in the Deaf
• Quality of Life Measures in the Elderly and Later Life
• Quality of Life Measures in the Elderly and the Role of Social Support in Elderly Chinese
• Quality of Life Measures in the Mentally Ill
• Quality of Life of Relatives of Patients with Obsessive-Compulsive Disorder
• Quality of Life of Urban Slum Residents
• Quality of Life with Localized Prostate Cancer: Japanese Perspectives
• Quality of Life, Drugs and Diet in Hypertensive Patients
• Relationship Between Pain and Quality of Life
• Risk Perception and Relationships with Quality of Life Measures
• Schizophrenia and Quality of Life
• Spa Therapy and Quality of Life Measures
• Subjective Quality of Life Measures - General Principles and Concepts
• The Correlations Between the Presence of Comorbidities and Psychological Distress and Health-Related Quality of Life
• The Irritable Bowel Syndrome IBS-QOL in China
• The MacDQoL Individualized Measure of the Impact of Macular Degeneration on Quality of Life
• Total Gastrectomy: Quality of Life and Other Health Measures

Part 4: Glossary