ABOUT THIS BOOK
- Summarises the specific features and complications of the most common disorders, to give carers a better understanding of these conditions
- Encourages a holistic approach to care which provides both physical and psychological benefits to the patient
- Extensively illustrated throughout to aid understanding
The term neuromuscular disorders covers a wide range of conditions varying in age of onset, severity, and speed of progression but which share many common management issues. Written by a multidisciplinary author team for all those involved in the overall care and management of such individuals, this handbook smooths the journey for patients and carers through the complex maze of management issues relating to their condition.
Extensively illustrated throughout, Neuromuscular Disorders in the Adult concentrates on the care of the adult patient - including those who may have acquired their disability during childhood, providing practical advice and support for all professionals working with people with muscular dystrophy and other neuromuscular disorders.
Readership: Non-specialist therapy and care staff (including physiotherapists, occupational therapists and social workers) in the local community, doctors, nurses, dieticians, orthotists and non-specialist medical staff working in general hospitals, other community medical staff including nurses and GP's, staff in respite care establishments, rehabilitation centres and hospices, and carers and families.
TABLE OF CONTENTS
1: What are neuromuscular disorders?
2: Medical management
3: Hospital admissions
5: Physical well being
6: Psychological well being
7: Living with muscle disease
David Hilton-Jones, Clinical Director, Muscular Dystrophy Campaign Muscle and Nerve Centre, UK, Jane Freebody, Specialist Physiotherapist, Oxford Muscle Clinic, UK, and Jane Stein, Regional Care Advisor, Muscular Dystrophy Campaign, Oxford Muscle Centre, UK
Dr Hilton-Jones developed an interest in muscle diseases when working for Dr John Morgan-Hughes at Queen Square, London before spending a year training with the late Professor George Karpati in Montreal. He was appointed as a consultant neurologist in Oxford, UK with the intention of developing services for patients with neuromuscular disorders and is now Clinical Director of the Oxford Muscle & Nerve Centre, supported by the Muscular Dystrophy Campaign. He is also Clinical Director of the Oxford Myasthenia Centre, supported by the Myasthenia Gravis Association. His major interest is in combining clinical practice and research.