Handbook of Communication in Oncology and Palliative Care

ABOUT THIS BOOK

• The dedicated communication skills training curriculum details key steps, processes and tasks that optimize communication
• The historical, theoretical, evidence-based and experiential aspects of the book offer a practical guide across a gamet of difficult clinical predicaments
• Superb tables give multiple clinical examples, illustrating how to communicate well
• Research-oriented chapters assist the academic in empirical studies

This comprehensive text provides clinicians with practical and evidence-based guidelines to achieve effective, patient-centered communication in the areas of cancer and palliative care. Written by an outstanding panel of international experts, it integrates empirical findings with clinical wisdom, draws on historical approaches and presents a state-of-the-art curriculum for applied communication skills training for the specialist oncologist, surgeon, nurse and other multi-disciplinary team members involved in cancer care today.

In this book communication is broken down into key modules that cover the life-cycle of cancer care. They include coverage of diagnosis and treatment including clinical trials, empathic support in response to distress, transition to survivorship or palliative therapies, discussion of prognosis, conduct of family meetings, and care of the dying. Complementary training of patients in their communication with the doctor completes the interactive dyad. The art of teaching, impact of gender and power in the consultation and the ethical context are carefully considered.

Special communication challenges include discussion of genetic risk, rehabilitative and salvage surgery, promotion of treatment adherence, unanticipated adverse outcomes, intercultural issues, fertility and sexuality. The value of decision aides, question prompt lists, audio-recording of consultations and use of the internet is illustrated.
By looking across the full spectrum of disciplines involved in the multidisciplinary team, discipline-specific issues are considered by experts in each field. In this manner, the needs of patients and their relatives are evaluated, including paediatric and geriatric populations. To achieve all of this, theoretical models are examined from the medical school to the highly specialized practice, facilitation training and actor training are made explicit, and international approaches to communication skills training are compared and contrasted. Finally, research tools that assist in coding cancer consultations, evaluating training courses, and employing mixed methods in studies aid the reader in providing clear and sensitive communication when handling challenging situations whilst treating cancer sufferers and palliative care patients.

Readership: This book will appeal to oncology specialists (including surgeons, medical and radiation oncologists, clinical oncologists and palliative care physicians), nurses, allied health practitioners, social workers, psychologists and psychiatrists, general practitioners and pastoral care workers, trainees, researchers, as well as advocacy groups and the intelligent lay public.

AUTHOR INFORMATION

Edited by David Kissane, Jimmie C. Holland Chair in Psycho-Oncology, Attending Psychiatrist and Chairman, Department of Psychiatry and Behavioral Sciences, Memorial Sloan-Kettering Cancer Center; Professor of Psychiatry, Weill Medical College of Cornell University, New York, NY, USA, Barry Bultz, Director, Department of Psychosocial Resources, Program Leader: Psychosocial Oncology, Supportive, Pain and Palliative Care, Tom Baker Cancer Centre, and Chair and Adjunct Professor, Division of Psychosocial Oncology, Department of Oncology, University of Calgary, Canada, Phyllis Butow, Professor, NHMRC Principle Research Fellow, and Chair of the Australian Psycho-Oncology Co-operative Research Group, School of Psychology, University of Sydney, Australia, and Ilora Finlay, Professor, Cardiff University; Consultant in Palliative Medicine, Velindre Hospital, Cardiff; Independent Crossbench member, House of Lords, Westminster, London, UK

TABLE OF CONTENTS

Section A: Introduction to communication studies in cancer and palliative medicine
1: Mack Lipkin: The history of communications skills knowledge and training
2: Stewart M Dunn: The art of teaching communication skills
3: Richard Brown and Carma Bylund: Theoretical models of communication skill training
4: Cathy Charles and Amiram Gafni: Shared treatment decision-making and the use of decision aids
5: Laura A Siminoff: The ethics of communication in cancer and palliative care
6: Marianne Schmid Mast, Christina Klöckner and Judith A. Hall: Gender, power and nonverbal communication
7: Joshua Hauser & Gregory Makoul: Medical student training in communication skills
8: Donald J. Cegala & Dana Eisenberg: Overview of interventions to enhance cancer patients' participation in medical consultations

Section B: A core curriculum for communication skills training for oncology and palliative care
9: Walter F. Baile and Patricia A. Parker: Breaking bad news
10: Phyllis N Butow, Martin NH Tattersall & Martin Stockler: Discussing prognosis and communicating risk
11: David W Kissane: Communication training to achieve shared treatment decisions
12: Jennifer Philip and David W Kissane: Responding to difficult emotions
13: Linda Sheahan and Simon Wein: Denial and communication
14: Terrance L. Albrecht, Susan S. Eggly, John C. Ruckdeschel: Communicating with relatives/companions about cancer care
15: Nessa Coyle & David W Kissane: Conducting a family meeting
16: Linda E. Carlson & Barry D. Bultz: Communication about coping as a survivor
17: Lidia Schapira: Dealing with cancer recurrence
18: Josephine M. Clayton & David W. Kissane: Communication about transitioning patients to palliative care
19: Tomer Levin & Joseph S. Weiner: End-of-life communication training

Section C: A specialty curriculum for oncology
20: Richard Brown & Terrance Albrecht: Enrolment in clinical trials
21: Jane Turner: Working as a multidisciplinary team
22: Elizabeth Lobb & Clara Gaff: Communicating genetic risk
23: Andrea Pusic, Rachel Bell & Diana Harcourt: Rehabilitative and salvage surgery
24: Penelope Schofield, Justine Diggens, Sue Hegarty, Catherine Charleson, Rita Marigliani, Caroline Nehill & Michael Jefford: Discussing unproven therapies
25: Carma L. Bylund & Jennifer A. Gueguen: The effect of internet use on the doctor-cancer patient relationship
26: Kelly Haskard & M. Robin DiMatteo: Promoting treatment adherence
27: Melanie Lovell & Frances Boyle: Communication strategies and skills for optimum pain control
28: Thomas Gallagher and Afaf Girgis: Discussing adverse outcomes with patients
29: Martin Tattersall: Clinical perspectives on shared decision-making
30: Thomas F. Hack & Lesley F. Degner: Audio-recording important consultations for patients and their familities - putting evidence into practice
31: Steven Klimidis & Harry Minas: Working with interpreters and achieving culturally competent communication
32: Bejoy C. Thomas, Joshua J. Lounsberry & Linda E. Carlson: Challenges in communicating with ethnically diverse populations
33: James Hallenbeck & Vyjeyanthi S. Periyakoil: Intercultural communication in palliative care
34: Zeev Rosberger, Jeanne Carter, Marie Achille, Barry Bultz & Peter Chan: Communicating about infertility risks
35: John W. Robinson & Joshua J. Lounsberry: Communicating about sexuality in cancer care

Section D: Communication issues across the disciplines
36: Sandra Winterburn & Susie Wilkinson: The challenges and rewards of communication skills training for oncology and palliative care nurses in the United Kingdom
37: Anthony De La Cruz, Richard Brown & Steve Passik: Ambulatory nurses responding to depression
38: Carrie Lethborg & Grace Christ: Social work support in crisis
39: Kim Feigin & Laura Liberman: Communication in radiology
40: Alexandra Heerdt, Bernard Park & Patrick Boland: Communication in surgical oncology
41: Lai Cheng Yew & Jane Maher: Communication in non-surgical oncology
42: Ilora Finlay: Palliative medicine: communication to promote life near the end-of-life
43: Peter Speck & Christopher Herbert: Communication issues in pastoral care and chaplaincy
44: Venetia Bourrier & Brent Schacter: Communication in oncology pharmacy: the challenge of the treatment adherence
45: Barry D. Bultz, Paul B. Jacobsen & Matthew Loscalzo: Psychosocial program development
46: Ron Adelman & Michelle Green: Communication challenges with the elderly
47: Andrew Roth & Christian Nelson: Issues for cognitively impaired elderly patients
48: Cynthia W. Moore, Michele Pengelly & Paula Rauch: Communicating with children when a parent is dying
49: Marilyn Hundleby, Kate Collie & Linda E. Carlson: Creative arts in oncology

Section E: Education and training
50: Suzanne Kurtz & Lara Cooke: Learner-centered communication
51: Carma L. Bylund, Richard Brown, Barbara Lubrano di Ciccone & Lyuba Konopasek: Facilitating skills practice in communication role play sessions: essential elements and training facilitators
52: Paul Heinrich: The role of the actor in medical education
53: Carma Bylund, thomas D'Agostino & Betty Chewning: Training patients to reach their communication goals: a concordance perspective

Section F: International initiatives in communication training
54: Robert Arnold, Anthony Back, Kelly Fryer-Edwards & Walter Baile: The OncoTalk model
55: F. Stiefel, J. Bernhard, G. Bianchi, L. Dietrich, Ch. Hürny, A. Kiss & B Wössmer: The Swiss model
56: Caroline Nehill & Alison Evans: The Australian model
57: Simon Noble, Nicola Pease & Ilora Finlay: The United Kingdom general practitioner and pallaitve care model
58: Isabelle MErckaert, Yves Libert & Darius Razavi: Communication skills training and research: the Brussels experience

Section G: Research in cancer communication
59: Lyuba Konopasek, Marcy Rosenbaum, John Encandela & Kathy Cole-Kelly: Evaluating communication skills training courses
60: Felicia Roberts: Qualitative approaches to clinician-patient communication
61: Phyllis Butow & Sarah Ford: Doctor-patient communication interaction analysis systems
62: Debra Roter: The Roter Interaction Analysis System (RIAS): applicability within the context of cancer and palliative care