Neuropalliative Care, Part II (Handbook of Clinical Neurology, Vol. 191)

SECTION 3. Neuropalliative Care in Specific Settings 1. Palliative care after stroke survival 2. Palliative care approaches to acute stroke in the hospital setting 3. Outpatient neuropalliative care 4. Community-based neuropalliative care

 

SECTION 4. Neuropalliative Care for Specific Conditions 5. Palliative care in brain tumors 6. Palliative care for people with dementia 7. Palliative care in Parkinson disease and related disorders 8. Palliative care in multiple sclerosis 9. Palliative care principles in ALS 10. Pediatric neuropalliative care 11. Neonatal neuropalliative aare

 

SECTION 5. Psychosocial Support, Ethics and Education 12. Care partner support 13. Spirituality and spiritual distress in neurologic illness 14. Neurology ethics at the end of life 15. Education in neuropalliative care

Neuropalliative Care, Part Two, Volume 191 covers a type of care that is given when there is no cure for the neurological disorder and the patient is in distress. It provides a scholarly background of neuropalliative care, from historic underpinnings to its practice in various geographical regions, along with best practices for specific neurological disorders. It covers the work of multi or interdisciplinary teams whose care is intended to make the patient as comfortable as possible and includes partners and families in treatment plans.

 

AUTHORS

 

Janis M. Miyasaki, MD, MEd, FRCPC, FAAN, is a graduate of the University of Toronto medical school, neurology residency program, and a movement disorders fellowship under Anthony Lang, MD, FAAN. From 1999-2013, she was a faculty member at the University of Toronto assuming the roles as Director of Education for Neurology for four hospitals, ward chief, Physician-In-Chief, Toronto Western Hospital, Associate Director of the Movement Disorders Program and other leadership roles. In 2007, Miyasaki initiated the first neurologist-led Palliative Care for movement disorders in the world. Since 2014, Miyasaki joined the University of Alberta and is currently the Director of Parkinson and Movement Disorders and Co-Director of the Complex Neurologic Symptoms Clinic, Neuropalliative Care. In 2019, she received the Parkinson Alberta Association award for outstanding contribution to patient care, education, and research . She is currently the Vice President of the American Academy of Neurology and the Director of Neurology, Department of Medicine and Zone Section Chief, Neurology, Northern Alberta. She is an active clinical researcher, holding grants, mentoring young researchers in several spheres of movement disorders, neuropalliative care, physician wellness, and equity.

 

Dr. Kluger is the Julius, Helen and Robert Fine Professor of Neurology and the founding director of the Neuropalliative Care Service and Palliative Care Research Center at the University of Rochester. He is also the founding President of the International Neuropalliative Care Society (INPCS) and a co-creator of the Education in Palliative and End-of-life Care Neurology (EPEC-N) program. He is a pioneer in the application of palliative care approaches to persons living with neurologic illness and has made notable contributions to outpatient models of care, the education of neurologists, and clinical research. His research has been funded by the National Institutes of Health, the Patient Centered Outcomes Research Institute, the Michael J. Fox Foundation, the Davis Phinney Foundation, and the Department of Defense. When not at work, he enjoys spending time with his family, anything outdoors, music, writing and professional wrestling. You can follow his non-academic writing on medical misinformation, spirituality and other topics at benzikluger.com.