About the book
- Provides easy-to-read formats whenever possible, such as bulleted lists
- Contains out-of-text bowed key-points to help ease the assimilation of important information contained in longer passages
- A question-and-answer format is used in chapters dealing with practical information about which patients and their families may need to take the lead since they are not often brought up by physicians
- Important terms appear in bold and are defined on the page at first mention
The American Academy of Neurology's (AAN) Neurology Now Books series answer the questions and concerns of patients and caregivers with specific neurologic diseases who are navigating a host of issues related to living-often long-term-with a neurologic illness.
Navigating Life with Parkinson's Disease is a guide for anyone affected by Parkinson's--patients, family members, friends, and caregivers. Containing the most up-to-date information on the disease, one of the most common nervous system diseases, it also discusses the available treatments and provides practical advice on how to manage the disease in the long term. Emphasizing life-style adjustments that will provide a better quality of life and moderate the burden for patients and their loved ones, Navigating Life with Parkinson's Disease answers many questions and clarifies misunderstandings regarding the disease.
While addressing all the relevant aspects of the disease, the authors do so in a manner that is approachable and easily understandable. Question and answer sections are provided, while "hot topics" are called out for easy visibility. The authors have also included true patient stories that will both inspire and instruct. The authors have also taken care to address several topics often not mentioned in physician-directed disease management, such as how to talk to family and friends about one's life with Parkinson's; what role the care partner can play, and what is the best way to help a loved one without facing burnout.
Promoting the patient-centered, multi- and multidisciplinary model of chronic
disease management, Navigating Life with Parkinson's Disease empowers patients
and their families with the necessary information to take charge of their health
Readership: Patients and caregivers affected by Parkinson's disease. Neurologists and other allied health professionals.
Table of contents
CHAPTER 1: WHAT IS IT? WHY ME?
What is it?
What Causes Parkinson Disease?
What Are the Stages of the Disease?
Who Gets the Disease? Why Me?
Is There Help?
The Outlook for People with Parkinson Disease
CHAPTER 2: THE MOTOR SYMPTOMS
Loss of Balance, Freezing, and Falling
Other Motor Symptoms
Motor Symptoms That May Occur as a Complication of Treatment
CHAPTER 3: THE NON-MOTOR SYMPTOMS
CHAPTER 4: DIAGNOSIS
CHAPTER 5: HOW WILL MY LIFE CHANGE?
Reacting to the Diagnosis
Seeking More Information
CHAPTER 6: DISEASE MANAGEMENT: GENERAL PRINCIPLES, MEDICATIONS, AND SURGERY
What Are Our Weapons in Treating Parkinson Disease?
What if I Don't Want to Start Medications Right Away?
Brain Surgery for Parkinson Disease
CHAPTER 7: DISEASE MANAGEMENT: REHABILITATION THERAPY, ASSISTIVE DEVICES, AND ADAPTIVE EQUIPMENT
Assistive Devices and Adaptive Equipment
CHAPTER 8: DISEASE MANAGEMENT: SPECIFIC SYMPTOMS
Managing Tremor, Bradykinesia, and Rigidity
Managing Balance Challenges and Freezing of Gait
Managing Weakness and Fatigue
Managing Dyskinesia, Dystonia, and Wearing Off
Managing Speech and Communication Problems
Managing Excessive Salivation, Drooling, and Thick Secretions
Managing Swallowing Problems
Managing Vision Problems
Managing Difficulties with Bladder Control
Dealing With Loss of Mobility in the Advanced Stages
Dealing With Mild Cognitive Symptoms
Managing Confusion, Hallucinations, and Dementia
Dealing With Apathy, Depression, Impulsivity, and Anxiety
Managing Sleep Changes in Parkinson Disease
Managing Orthostatic Hypotension
Keeping Skin in Shape
Medications to Avoid
CHAPTER 9: LIFESTYLE CHANGES AND DISEASE MANAGEMENT
The Importance of Exercise
Using Complementary Therapies
The Power of Music and Dance
Getting Involved in the Parkinson Community
CHAPTER 10: RESEARCH
Why Should I Consider Participating in Research?
What Kinds of Research Studies May Be Open to a Person With Parkinson Disease?
The "Informed Consent"
Where Can I Learn More?
CHAPTER 11: LEGAL AND FINANCIAL ISSUES
HIPAA-What Information Do I Have Access to and How to Make the Most of It
Maintaining Tracking Information through Electronic Medical Records
CHAPTER 12: THE CAREPARTNER
Coping With Caregiver Stress and Fatigue
Planning for the Future
CHAPTER 13: COMMUNITY INVOLVEMENT, ADVOCACY, AND RESOURCES
A Passion for Advocacy
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