- The first comprehensive overview of Advance Care Planning in the UK
- Contains a worldwide perspective of Advance Care Planning from a range of international contributors
- Contains a foreword by Professor Mike Richards CBE, National Clinical Director for Cancer at the Department of Health
Advance Care Planning is an essential part of the new NHS National Programme on End of Life Care, aiming to improve the chances of 'a good death' by discussing and planning how this might be managed. This book helps readers explore a wide range of issues and practicalities in providing Advance Care Planning (ACP) for their patients nearing the end of life.
Advance Care Planning in End of Life Care takes a comprehensive look at the subject of ACP, frames the purpose, process and outcomes and includes contributions from experts from around the world. It is an invaluable resource for all clinicians involved in Advance Care Planning and End of Life Care, and will also be of interest to GPs and those working in care/nursing homes and PCTs.
Readership: This book will be an invaluable resource for all clinicians involved
in Advance Care Planning and end of life care. It will also be of interest to
GPs and those working in care/nursing homes and PCTs.
TABLE OF CONTENTS
Section 1 - Introduction to Advance Care Planning (ACP) - Why do it?
1: Keri Thomas: Overview and introduction to Advance Care Planning
2: Jane Seymour and Gillian Horne: Advance Care Planning for the end of life: an overview
3: Heidi Macleod, David Oliver and Don Redding: Listening to the patient's voice
4: Simon Conroy: Advance Care Planning for older people
5: Max Watson: Spiritual aspects of Advance Care Planning
6: Rob George: Advance Care Planning: politically correct, but ethically sound?
Section 2 - Context in the UK
7: Claire Henry and Sheila Joseph: Advance Care Planning for the end of life
8: Simon Chapman and Andrew Makin: he Implications of the Mental Capacity Act (MCA) 2005 for Advance Care Planning and decision making
9: Ben Lobo: Advance Decisions to Refuse Treatment (ADRT)
10: Madeline Bass: The tough questions - Do Not Attempt Resuscitation (DNAR) discussions
Section 3 - The UK Experience of ACP - what's happening now
11: Les Storey and Adrienne Betteley: Preferred priorities for care - An Advance Care Planning process
12: Deborah Holman, Nikki Sawkins and Jo Hockley: Experience of use of Advance Care Planning (ACP) in care homes
13: Bruce Mason, Dierdra Sives and Scott A. Murray: Advance Care Planning in the community
14: Simon Noble: ACP in Hospice and Specialist Palliative Care
15: Angela Thompson: Advanced Care Planning - Thinking Ahead for Parents and Children
16: Claud Regnard: Advance Care Planning (ACP) for people who do not have capacity
Section 4 - International Experience of ACP - What can we learn from other countries?
17: Anne M. Wilkinson: Advance directives and Advance Care Planning: the US experience
18: Joanne Lynn and Anne M. Wilkinson: A common sense guide to improving Advance Care Planning - from theory to practice
19: AnnMarie Nielsen and Sharon Baxter: Advance Care Planning in Canada: past experience and current strategies
20: William Silvester and Karen M Detering: The evolution of Advance Care Planning in Australia with a focus on hospital care
21: Josephine M. Clayton: Advance Care Planning discussions in Australia - the development of clinical practice guidelines
22: Eric Fairbank: Living and dying in style: Australia - an example of ACP in action
Section 5 - Practicalities and Getting Going
23: Jackie Beavan, Carolyn Fowler, Sarah Russell: Communication skills and Advance Care Planning
24: Jennifer Stodhart: Working with local commissioners to deliver advanced care planning
Appendix 1 - Useful websites and resources
Appendix 2 - Aids to communication
Appendix 3 - Guidance and Useful ACP Tools
Professor Keri Thomas is National Clinical Lead of the Gold Standards Framework Centre, (www.goldstandardsframework.nhs.uk <http://www.goldstandardsframework.nhs.uk>) based in the West Midlands, which focuses on developing practical means to enable top quality care for all people nearing the end of life. As a practicing GP working in hospices for over 20 years, and a Macmillan GP for 6 years, she was the originator of the Gold Standards Framework (GSF) for primary care in 2001 and in care homes in 2004, and continues to lead work in this country. She is Hon. Professor of End of Life Care at University of Birmingham and works with the newly developed charity Omega, the National Association for End of Life Care in supporting carers, use of ADA audit tool and other areas. She is author of 'Caring for the Dying at Home' has written and lectured extensively in the UK and abroad on community palliative care and end of life care, and has been involved in various national strategic and policy groups.
Dr Ben Lobo is National Clinical Lead for Advance Decisions to Refuse Treatment and Chair of the ADRT Project Team (based in the East Midlands) which was funded to provide guidance, website (ADRTNHS.co.uk) and specialist training for health and social care professionals. Ben actively promotes Advance Care Planning in his community role a Medical Director and Consultant Geriatrician He continues to contribute to a number of regional and national initiatives and provides expert support to a number of national organisations and charities including the Motor Neuron Disease Association, Neurological Alliance, and British Heart Foundation. Ben is involved with research and publishing. Ben qualified at Nottingham University in 1993 and has held posts in Nottingham, Leicester and Oxford hospitals. He has specialist training in Acute / General and Geriatric Medicine as well as advanced skills in Diagnostic Imaging and Cardiology.